Writer, Pain Advocate, USA
Joletta is a nature lover, dog mom, writer, and fierce advocate for the equitable integration of lived experience into the study, research, and treatment of pain. She came to this work through her own experiences living with ongoing pain that didn’t make sense and didn’t get better like it should have. She medically retired from the firefighter paramedic career that had defined her and set out on a path to better understand her pain, and herself with pain. She tries to make sense of things through writing, which she shares at MyCuppaJo.substack.com. Joletta’s been a patient partner on numerous research teams throughout the world and has published a number of peer-reviewed articles and textbook chapters. She was also founding Co-chair of IASP’s Global Alliance of Partners for Pain Advocacy and is the first Patient and Public Partnerships Editor at the Journal of Orthopaedic and Sports Physical Therapy.
Lived Experience as a Valid and Valuable Way of Knowing Pain
What can we learn about pain from people who have lived with it? In this talk I will explore how lived expertise can broaden and deepen our understanding of pain and what can be done about it.